I was the mother of two daughters with Glycogen Storage Disease, type 1b in May of 1996 when Medi-Cal arbitrarily tried to cut off my most seriously ill daughter’s supply of granulocyte stimulating factor due to its large cost. Had my other daughter with this disease not been in the hospital at the time, I wouldn’t have had the opportunity to use her medicine for my other daughter and she would have ended up in the hospital as well with severe infections. The cost of paying for the medication far outweighs the cost of hospitalization, not to mention the threat to my daughter’s life. I discussed this fact with the company who was supplying our medical supplies at the time. The young man that I spoke with told me that children had been allowed to die when the state refused treatments/medications that were costly. He also stated that he would not go on the record to say this. As it turned out, the state got their wish when 2 months later my daughter died and they no longer had to pay for her care. Now they have targeted my other daughter who has had to pay for a lawyer in recent years when she was being threatened with losing her benefits. It just goes on and on…It isn’t enough that some persons are born with very painful, difficult conditions, but then they are treated as less than deserving inconveniences to a society that has such a fear of disability that they would kill off those perceived as defective so that they don’t have to be reminded that they themselves will be persons with disability at some point in their lives.